Website and Privacy Policies

Website and Privacy Policies

The success of our work is dependent on your goodwill and trust. It is important to us that we do everything we can to make sure that the information we provide on this site is up to date and accurate, and that any data or information we receive from you is handled according to the law.

This page lists our website policies covering the content, review processes, privacy and terms of use. The site was launched in May 2016 to give accessible information to people of all ages affected by coeliac disease and dermatitis herpetiformis, including professionals working in the field. The information on this site is not intended to be an alternative to seeking professional help and advice. The information contained herein is for educational use only. If you believe you may be affected by coeliac disease, you should consult your GP.


The ISSCD-Global website observes a number of standards for accessibility including WAA. There is a text only option.


The ISSCD-Global website may accept advertising which may be of interest to its users. The ISSCD cannot be held responsible for any claims made by advertisers. To advertise, please contact us.


Content on our website includes evidence based information about coeliac disease, progress in research, specialist information for researchers and care professionals, news and events. Content goes through a quality checking process before it is published.


Many people worry that cookies threaten their privacy or might affect their computer's functioning. A cookie is a small piece of information sent from our website to your computer and stored on your hard drive. A cookie can contain information, such as a unique user identifier, that the site uses to track your visit. They help us identify the number of unique visitors to our website, whether or not those visitors are repeat visitors, and the source of the visits. Cookies cannot be executed as code or used to deliver a virus. Other servers cannot read them and personal information cannot be gathered from them. You can find out more information about cookies at and

The cookies from our website are only used during your visit to our website and are not kept for any longer. We do not allow any advertisers to use cookies through our website. We therefore believe that our use of cookies poses no risk to you.

If you do not agree to these uses of cookies you can select 'disable cookies' on your browser. The option to do so is normally found in your browser's security settings section. However, please note, permanently disabling cookies in your browser may hinder your use of our website as well as other websites and interactive services.

Copyright and Trade Marks

Our logo and website is covered by copyright and material may not be copied for public use without prior permission. If you would like to use any graphics or logos from the ISSCD-Global website, you must request permission.

Documents may be copied for personal use only on the condition that copyright and source indications are also copied, no modifications are made and the document is copied entirely. However, some documents and photos have been published on this site with the permission of the relevant copyright owners. All rights are reserved on these documents and permission to copy them must be requested from the copyright owners.

Data protection and privacy

When you contact ISSCD to become a Member, make a donation, purchase, support or submit content, such as events, news and documents, online or you telephone, email, or write to ISSCD we may receive and retain personal information about you. This might be your name, email address, postal address, telephone or mobile number, bank account details to process Membership or donations and professional / career information.

By submitting your details, you enable ISSCD (and where applicable any sub-contractors we may use) to provide you with the goods, services, information, activities or online content you select.

Any communication or material that you transmit to, or post on, any public area of the site including data, questions, comments, suggestions or the like will be treated as non-confidential and non proprietary information.

If you are browsing our website as an anonymous visitor, we may still collect certain information from you, such as your IP address (this can identify a specific computer or other network device on the internet).

We also use cookies. See the section on cookies for what these are and how we use them.

Sharing my information

We will only use your information within ISSCD for the purposes for which it was obtained, unless you have explicitly agreed that we may share your information with another organisation. Sometimes we contract third parties to process your information on our behalf. We require these third parties to comply strictly with our instructions and data protection laws.

We will keep your information confidential except where disclosure is required or permitted by law (for example to government bodies for tax purposes or the police in the detection of crime subject to a request in writing).

How long will ISSCD keep my personal information?

We will hold your personal information on our systems for as long as is necessary for the relevant activity eg we will keep a record of donations for at least seven years for accounting reasons. If you request us not to send you marketing information we will keep a record of your contact details and appropriate information to enable us to comply with your request not to be contacted by us.

Can I update, correct or delete my personal information?

Members of ISSCD can access essential personal information at any time by contacting us on

Under the Data Protection Act 1998 you have the right to request a copy of the personal information we hold about you and to have any inaccuracies corrected. (We charge £10 for information and may require you to prove your identity with two pieces of approved identification).


In the case of queries or complaints, please inform us by email to Any complaints can also be directed to the following address: 

ISSCD c/o Coeliac UK, 3rd floor Apollo Centre, Desborough Road, High Wycombe, Buckinghamshire, HP11 2QW. 

Alternatively you can submit a case to the European Commission's Online Dispute Resolution Service at