Privacy Policy

Contact method for enquiries regarding data protection

ISSCD c/o Coeliac UK,
3rd floor Apollo Centre
Desborough Road, High Wycombe, Buckinghamshire, HP11 2QW, UK

Email: info@isscd-global.org

General information about data processing

Scope of the processing of personal data

Personal data is all information that relates to an identified or identifiable natural person. We collect and use personal data from our users only to the extent necessary to provide a functional website and to present and deliver our content and services. The personal data of our users is only collected and used with the consent of the person using the website. There is an exception that applies in cases where prior consent cannot be obtained and processing the data is permitted by a statutory provision.

Legal bases for collecting and processing your personal data

• Where we obtain the consent of the data subject to processing operations involving personal data, Article 6(1)(a) GDPR is the legal basis for processing the personal data.
• Where processing personal data is necessary for the performance of a contract to which the data subject is party, Article 6(1)(b) GDPR is the legal basis. This also applies to processing operations that are necessary in order to take steps prior to entering into a contract.
• Where processing personal data is necessary for compliance with a legal obligation to which the data controller is subject, Article 6(1)(c) GDPR is the legal basis.
• Where processing personal data is necessary to protect the vital interests of the data subject or another natural person, Article 6(1)(d) GDPR is the legal basis.
• Where processing is necessary for the purposes of the legitimate interests pursued by the data controller or by a third party and the interests, fundamental rights and fundamental freedoms of the data subject do not override such interest above, then Article 6(1)(f) GDPR is the legal basis for such processing.

Data deletion (erasure) and storage period

The personal data of the data subject is erased (deleted) or restricted as soon as the purpose for storing the data no longer applies. Data may also be stored if this has been provided for by the European or national legislator in Union regulations, laws or other provisions to which the data controller is subject. Data is also deleted (erased) or restricted when a storage period defined by the above regulations expires, unless it is necessary to continue to store the data to enter into or perform a contract.

Providing the website and creating log files

When you access and use our website, we collect the personal data that your browser automatically sends to our server. This information is stored temporarily in a log file. When you use our website, we collect the following data, which we require for technical purposes to display our website and guarantee stability and security:

• Information about browser type and version used
• The user’s operating system
• The user’s internet service provider
• The user’s IP address
• The date and time of access
• Websites from which the user’s system accesses our website
• Websites that are accessed by the user’s system via our website

The data is also stored in the log files on our system. This does not include the user’s IP addresses or other data that allows the data to be linked to a user. This data is not stored with other personal data of the user.

Legal basis for the processing of personal data

The legal basis for processing this data is Article 6(1)(f) GDPR. Processing this data is necessary to provide a website and is therefore for the purpose of safeguarding a legitimate interest of our company.

Storage period

Temporary storage of the IP address by the system is necessary to allow us to deliver the website to the user’s computer. The user’s IP address has to continue to be stored for the duration of the session for this purpose.

Use of cookies

Our website uses cookies. Cookies are small text files that are stored locally in the cache of the browser you are using. When a user accesses our website, a cookie may be stored on the user’s operating system. This cookie contains a string of characters that allows the browser to be identified uniquely when it accesses the website again. Cookies are not part of the PC system, cannot run programs, and do not contain viruses.

We use cookies in order to make our website more user-friendly. Some elements of our website require the accessing browser to be identified even after you go to a different page. Using cookies may be strictly necessary or for other purposes. A range of different cookies are used on our websites, including different types and with different functions.

Session cookies and persistent cookies

A session cookie is a type of cookie that is deleted as soon as the user closes the browser after their current session.

Persistent cookies are stored on the user’s device to provide login information, settings, or preferences when the user next visits the website. They are for the purpose of making it more convenient and faster to use the website. Storage of these cookies is limited to a specific duration, after which they are deleted automatically. Please note that the storage period can vary, depending on the cookie. You can also delete these cookies from your system before then, using the usual features of your browser.

Strictly necessary cookies

We use strictly necessary cookies on our website. They are for the purpose of ensuring that the website functions by making basic functions such as page navigation and access to the website possible. The usage data collected via strictly necessary cookies is not processed to create usage profiles. We use session cookies to save a session ID, which allows various requests from your browser to be linked to the same session. Some elements of our website require the accessing browser to be identified even after you go to a different page. Without these cookies, our website cannot function correctly. The legal basis for such processing is Article 6(1)(f) GDPR. We use session cookies to make it more appealing and effective to use the website. The session cookies are deleted as soon as you log out or close your browser.

Cookies not strictly necessary

These cookies are used to make it more efficient and appealing to use the website. They are not necessary to be able to use the basic features of our website. The legal basis for such processing is your consent in accordance with Article 6(1)(a) GDPR. The cookies that are not strictly necessary are automatically deleted after a predefined duration, which can vary, depending on the cookie.

Preference cookies

Functional cookies store information such as login name, choice of language, and fonts, and provide improved and personalised features for website users. All the stored information is anonymised in this case. Specific cookies can be disabled or enabled by the user at any time under the cookie settings.

Statistics cookies

Statistic cookies help website owners understand how visitors are interacting with websites, by collecting and reporting information anonymously.

Marketing cookies

Third-party marketing cookies allow us to display a range of different products that match your interests. These cookies can record the web activities of users over a longer period of time. These cookies may recognise you on different devices that you use.

Storage period

As soon as the data sent to us via cookies is no longer required to achieve the purposes described above, this information is deleted, in particular if the cookies are disabled. They may continue to be stored on a case-by-case basis, if this is required by law.

Legal basis for the processing of personal data

The legal basis for processing strictly necessary cookies is our legitimate interest in processing personal data pursuant to Article 6(1)(f) GDPR. For cookies that are not strictly necessary and for third-party cookies, we require your consent. If you have given your consent to the use of cookies via the notification on our website (our “cookie banner”), lawful use of the data is additionally governed by Article 6(1)(a) GDPR. You may withdraw such consent at any time in the future by disabling cookies in your browser settings.

Configuring browser settings

You can manage the cookie settings via the configuration options in your browser settings, as described below. Most browsers are set by default to accept cookies automatically. By changing the settings on your internet browser, you can fully disable or restrict cookies being transferred. Cookies that have already been stored can be deleted at any time. They can also be deleted automatically. However, please note that you may not be able to use all the features of our website without restriction if cookies are disabled on our website via your browser settings. You can also use your browser settings to delete cookies that have already been stored on your browser or to view the storage period. You can also configure your browser to display a notification before cookies are stored. The various browsers work in different ways. We therefore ask you to use the help menu on your browser to see the configuration options.

Cookie list

To change or check your settings again:

Contact form and email contact

Scope of the processing of personal data

Our websites have contact and membership forms that can be used to contact us electronically. If a user uses this option, the data entered on the input screen is sent to us and is stored. The following data may be collected via the contact forms:

• Gender
• Title
• First name
• Last name
• Middle initial
• Doctoral degrees
• Email address
• Position
• Institution / Organisation
• Membership categories and description of activity
• Details of the enquiry
• Optional files

This information is provided voluntarily and it is sent on your initiative. If the data you have provided includes details for contacting you, we will use those methods to get in touch with you regarding your enquiry. Your consent is obtained for data processing during the process of sending the data and you will be referred to this Privacy Policy. Alternatively, you can contact us using the email address provided. In that case, we store the user’s personal data sent with the email. The data is used exclusively to process your request or for the purpose of contacting you.

Purpose of data processing

The purpose of data processing is to provide the option of contacting us via a contact form or by email.

Storage period

The data is deleted as soon as the purpose for processing has been achieved and provided that no other statutory retention period prevents deletion. Such communication is at an end when it can be inferred from the circumstances that the matter in question has been conclusively resolved. In this regard, no data is sent to third parties without your consent.

Legal basis for the processing of personal data

The legal basis for processing the data, with consent from the user, is Article 6(1)(a) GDPR.

The legal basis for processing the data that is sent by email is Article 6(1)(f) GDPR.

If the contact by email is for the purpose of entering into a contract, Article 6(1)(b) GDPR applies as the legal basis for such processing.

Use of web analytics tools

To make our website as appealing and convenient as possible for you as a user, we use some services provided by external service providers. We provide information below regarding how these services and features are used and deployed so that you can exercise your rights – if necessary including with the service providers.

If you have given your consent via our cookie banner, our website uses features provided by web analytics services. Cookies are used for this purpose, which make it possible to analyse how users use the website. The information generated by the cookies is sent to the server of the provider and stored there.

The use of statistics and marketing cookies requires your consent in accordance with Article 6(1)(a) GDPR. When you first access our website, a cookie banner opens where you can give your explicit consent to statistics and marketing cookies being used.

Matomo Analytics web analytics tool

Scope of the processing of personal data

This website uses Matomo Analytics, which is open-source software that analyses visitor number statistics. Matomo uses cookies that make it possible to analyse how you use the website. These cookies are used to generate information about how the website is used, which is then sent to a server where the information is stored. Collected IP addresses are truncated by the last octet (8 bits) before being used to analyse usage behaviour, which makes them anonymous.

All statistics data is stored on a server that is in a data centre in Vienna.

Purpose of data processing

By processing personal data of our users, we can generate an analysis of the browsing behaviour of our users. The analyses generated by Matomo are used to compile reports on website activities so that we can continuously improve our website and adapt it to the needs of our users.

Storage period

The storage period for the Matomo Analytics data is set to 12 months. The set cookies are valid for up to 13 months.

Legal basis for the processing of personal data

The legal basis for such use is your explicit consent in accordance with Article 6(1)(a) GDPR. You may withdraw such consent at any time in the future by disabling cookies in your browser settings.

To disable Matomo on this website, go to:

Rights of the data subject

If personal data concerning you is processed, you are a data subject within the meaning of the GDPR and you are entitled to the rights set out below against the data controller.

Right of access

You have the right to request confirmation from us as the controller as to whether or not we are processing personal data concerning you. If there is such processing, you may request access to the following information from the data controller:

1. the purposes for which the personal data is processed;
2. the categories of personal data that are processed;
3. the recipients or categories of recipients to whom the personal data concerning you has been or will be disclosed;
4. the envisaged period for which the personal data concerning you will be stored, or, if specific details in this regard are not possible, the criteria used to determine that period;
5. the right to request from the controller rectification (correction) or erasure (deletion) of the personal data concerning you, the right to restriction of processing by the data controller and the right to object to such processing;
6. the right to lodge a complaint with a supervisory authority;
7. where the personal data is not collected from the data subject, any available information as to its source;
8. the existence of automated decision-making, including profiling, referred to in Article 22(1) and (4) GDPR and, at least in those cases, meaningful information about the logic involved, as well as the significance and the envisaged consequences of such processing for the data subject.
9. You have the right to request access to information regarding whether the personal data concerning you is transferred to a third country or an international organisation. In this regard, you may request to be informed of the appropriate safeguards in accordance with Article 46 GDPR in connection with the transfer.

Right to rectification (correction)

You have a right to incorrect data being rectified and/or to incomplete data being completed by the data controller, where the processed personal data concerning you is inaccurate or incomplete. The data controller must carry out rectification without delay.

Right to restriction of processing

Subject to the following conditions, you may request the restriction of the processing of your personal data:

1. if you contest the accuracy of the personal data, for a period enabling the controller to verify the accuracy of the personal data;
2. the processing is unlawful and you oppose the erasure of the personal data and request the restriction of the use of the personal data instead;
3. the controller no longer needs the personal data for the purposes of the processing, but you require the data for the establishment, exercise or defence of legal claims;
4. you have objected to processing pursuant to Article 21(1) GDPR pending the verification whether the legitimate grounds of the controller override your legitimate grounds.

Where processing of the personal data concerning you has been restricted, such personal data shall, with the exception of storage, only be processed with your consent or for the establishment, exercise or defence of legal claims or for the protection of the rights of another natural or legal person or for reasons of important public interest of the Union or of a Member State.

If the processing has been restricted subject to the above conditions, you shall be informed by the controller before the restriction of processing is lifted.

Right to erasure (“right to be forgotten”)

Obligation to erase

You may request that the controller erases the personal data concerning you without undue delay and the controller shall have the obligation to erase such data without undue delay where one of the following grounds applies:

1. The personal data concerning you is no longer necessary for the purposes for which it was collected or otherwise processed.
2. You withdraw your consent on which the processing was based in accordance with Art. 6(1)(a) or Art. 9(2)(a) GDPR, and there is no other legal basis for the processing.
3. You object to the processing pursuant to Article 21(1) of the GDPR and there are no overriding legitimate grounds for the processing, or you object to the processing pursuant to Article 21(2) of the GDPR.
4. The personal data concerning you has been processed unlawfully.
5. The erasure of the personal data concerning you is necessary to comply with a legal obligation under Union law or the law of the Member States to which the controller is subject.
6. The personal data concerning you has been collected in relation to the services offered by information society services pursuant to Art. 8(1) GDPR.

Information to third parties

Where the controller has made the personal data concerning you public and is obliged pursuant to Article 17(1) GDPR to erase the personal data, the controller, taking account of available technology and the cost of implementation, shall take reasonable steps, including technical measures, to inform controllers which are processing the personal data that you as the data subject have requested the erasure by such controllers of any links to, or copy or replication of, such personal data.

Exceptions

The right to erasure does not apply to the extent that processing is necessary:

1. for exercising the right of freedom of expression and information;
2. for compliance with a legal obligation which requires processing by Union or Member State law to which the controller is subject or for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller;
3. for reasons of public interest in the area of public health in accordance with points (h) and (i) of Article 9(2) as well as Article 9(3) GDPR;
4. 4. for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) GDPR in so far as the right referred to under “Obligation to erase (delete)” is likely to render impossible or seriously impair the achievement of the objectives of that processing; or
5. for the establishment, exercise or defence of legal claims.

Right to be informed of recipients

If you have exercised your right to rectification, erasure, or restriction of processing from the controller, the controller shall communicate such rectification or erasure of data or restriction of processing to all recipients to whom the personal data concerning you has been disclosed, unless this proves impossible or involves disproportionate effort. You have the right to be informed of these recipients by the data controller.

Right to data portability

You have the right to receive the personal data concerning you, which you have provided to the data controller, in a structured, commonly used and machine-readable format. You also have the right to transmit such data to another data controller without hindrance from the data controller to which the personal data has been provided, where the processing is based on consent pursuant to point (a) of Article 6(1) GDPR or point (a) of Article 9(2) GDPR or on a contract pursuant to point (b) of Article 6(1) GDPR and the processing is carried out by automated means.

In exercising this right, you also have the right to have the personal data concerning you transmitted directly from one controller to another, where technically feasible. This must not adversely affect the rights and freedoms of others. This right to data portability does not apply to processing of personal data that is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.

Right to object to processing

You have the right to object, on grounds relating to your particular situation, at any time to processing of personal data concerning you which is based on point (e) or (f) of Article 6(1) GDPR, including profiling based on those provisions.

The controller no longer processes the personal data concerning you unless the controller demonstrates compelling legitimate grounds for the processing which override your interests, rights and freedoms, or where the processing is for the establishment, exercise or defence of legal claims.

Where personal data concerning you is processed for direct marketing purposes, you have the right to object at any time to processing of personal data concerning you for purpose of such marketing, which includes profiling to the extent that it is related to such direct marketing.

If you object to the processing for the purposes of direct marketing, the personal data concerning you shall no longer be processed for these purposes.

Automated individual decision-making, including profiling

You have the right at any time to withdraw your declaration of consent under data protection law. Withdrawing consent does not affect the lawfulness of processing based on consent before it has been withdrawn.

Automated individual decision-making, including profiling

You have the right not to be subject to a decision based solely on automated processing, including profiling, which produces legal effects concerning you or similarly significantly affects you. This shall not apply if the decision:

1. is necessary for entering into, or performing, a contract between you and the data controller;
2. is authorised by Union or Member State law to which the controller is subject and which also lays down suitable measures to safeguard your rights and freedoms and your legitimate interests; or
3. is based on your explicit consent.

However, such decisions must not be based on special categories of personal data referred to in Article 9(1) GDPR, unless point (a) or (g) of Article 9(2) GDPR applies and suitable measures to safeguard your rights and freedoms and your legitimate interests are in place.

In the cases referred to in (1) and (3), the data controller shall implement suitable measures to safeguard your rights and freedoms and your legitimate interests, at least the right to obtain human intervention on the part of the controller, to express your point of view and to contest the decision.

Right to lodge a complaint with a supervisory authority

Without prejudice to any other administrative or judicial remedy, you also have the right to lodge a complaint with a supervisory authority, in particular in the Member State of your habitual residence, place of work or place of the alleged infringement if you consider that the processing of the personal data relating to you infringes the GDPR. The supervisory authority with which the complaint has been lodged shall inform the complainant on the progress and the outcome of the complaint including the possibility of a judicial remedy pursuant to Article 78 GDPR. If you believe that the processing of your data infringes data protection law or that your data protection claims have otherwise been infringed in some way, you may lodge a complaint with the relevant supervisory authority.

In Austria, this is the Data Protection Authority, Barichgasse 40-42, 1030 Vienna, Phone: +43 1 52 152-0, Email: dsb@dsb.gv.at, Homepage: https://www.dsb.gv.at/.

Hyperlinks to third-party websites

On our websites, we use hyperlinks to the websites of other providers. When these hyperlinks are activated, you are redirected from one of our websites directly to the website(s) of other providers. You can see that this has occurred, for example, from the change of URL. We cannot accept any responsibility for your data being handled confidentially on third-party websites, as we have no influence over whether such companies comply with data protection regulations. Please see the information about how these companies handle your personal data directly on their websites.

Data security

We are committed to protecting your privacy and treating your personal data as confidential. To avoid manipulation, loss or misuse of your data that we store, we implement extensive technical and organisational security measures, which are regularly reviewed and updated to reflect the progress of technology.

However, please note that, given the structure of the internet, it is possible that the data protection rules and the above security measures may not be followed by other individuals and institutions for whom and for which we are not responsible. Data disclosed in unencrypted format in particular – for example, disclosed by email – can be intercepted and read by third parties. We have no technical means of influencing this situation. It is the responsibility of the user to protect the data provided by the user against misuse, by using encryption or in any other way.